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red background with black and white text, #3 reads: Know that some people do not have capacity to understand change that comes with grief. Do not let them shame you for needed changes post-grief.
Showing posts with label Community Care. Show all posts
Showing posts with label Community Care. Show all posts
Those who know, know...
Image Description
red background with black and white text, #2 reads: Friends and family post-grief, who have had their own grief experiences, will often most be able to understand your new reality.
Podcast: Wanting to feel included but then be excused from participating…
Today's podcast comes out of a series I did called "Grief Truths" where I wrote about some of the tough realities we discovered after entering grief territory. This episode's topic explores more of the social-relational and self care aspects of the grief experience. It came out of my realizations that I wanted to be invited to things after our son died because I wanted to feel included (vs. feeling people were avoiding me because grief was scary to them). AND in the same breath, I wanted to be excused, no guilt nor shame about it, when I turned down the invitation because I couldn't handle "happy la-la" any longer.
So this episode tackles how we might realize new needs and how to create new priorities so those needs are met while being gentle on ourselves and those we love. Some details:
- Invite me, but excuse me for turning down that invitation.
- Baby showers and family activities after the death of a baby are not the same as pre-grief.
- Craving more self care, family care, and genuine relationship.
- Why pre-grief friends and family may not be able to serve your needs now.
- Family and friends post-grief, who have had their own grief experiences, often understand most.
- Time is precious, so being politely uncomfortable becomes a waste of everyone's time.
- Priorities change for so many who have grief experiences.
- Loss often includes other additional loss sometimes.
- Being aware is hard, but we need it to figure out how to meet new, maybe unfamiliar, needs.
- Holiday rituals change and not everyone can get on board with that.
- How to allow for new rituals and priorities without judgment of self or other.
- Children's Memorial Day, Blue Christmas services
- Change can be complicated if shame enters the picture.
- This is the space of creativity, and post-grief we begin to practice how to do things for own best care, even when it is hard and is annoying.
- But you are your own best advocate.
- Spending energy on this can only benefit you and your community.
- Asking to have needs met.
- It's okay that grief affects us BECAUSE we affect grief, too!
- You can do this.
To stream this podcast, click here.
Thanks as always for listening!
From my radical grandma heart to yours,
k-
If you like what you hear,
please click the tip jar to support
our grief+creativity efforts.
our grief+creativity efforts.
[Originally published as a written article at Radical Creativity, Friday, March 30, 2012]
Paper bags, throw away lives, and impossible expectations...
It is incredibly frustrating to see individuals, and our society as a whole, having impossible expectations around grief experiences. Today's share comes partly out of this rant I originally shared on one of my social media feeds, and it is worth repeating here to start us off:
Oh for the love of Pete!!!!! ARRRRG. Listen up, peoples. You cannot ever know more than the oppressed person themselves about what they need to find their liberation. This goes for social justice issues as well as for grief experiences!!!!!! If you actually think you have the right to tell another person they "need help" or "should get over it" or "need to find closure" or are "too sad" -- fuck you. You have internalized white supremacist imperialist capitalist patriarchy and are playing "father knows best" instead of being compassionate and present to a person who is already fucking hurting. Take your colonization bullshit and go play in your own yard. Hurting people need relationships that are partnering, curious, supportive. They do not need your prescription of propaganda for "the right way to do grief and healing" bullshit!!!!!!!!! ARG. [Have I mentioned my ability to be patient is challenged lately? ;P ]
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In the end, some of the things I wrote on the bags were gems. Some were starts that evolved into other pieces as I played with them. Some really were just trash that became bags used to ripen avocado or interesting surfaces to use as collage backgrounds on art pieces or something.
All of it was a reminder that if we want to be writers, then write. It's kind of like some of the sparks that Barb Sher has written throughout her different books about how if we want "to be" something, just start being it and see what happens. Now, of course, in a practical way, she wasn't advocating anything ridiculous like wanting to be violent, so start walking around with a gun!! But she was saying that for many things, you don't have to have a license or particular degree to just start doing it. If you want to be a writer, start a blog and write. Open a notebook and write. When someone asks what you do, answer with, "I'm a writer."
These things revolved around permissions that I had to practice giving myself. Maybe it is because I'm a girl/woman. Maybe it was some moral thing about "telling lies" from the religion I was raised with back in the day. Maybe it was individual internalized crap, maybe it was imposed from structural inequities, maybe both. Maybe maybe maybe. But for some reason, until encountering these kinds of practices with permission for myself, I kept looking for permission to call myself thus-and-such from someone else.
As a college student, I met a musician after a gig one night, and he asked about my studies. I told him I was a student of a particular professor, and the musician (who knew of this professor) said, "Oh you are a writer then. Great. What do you write?" It took me a moment to answer him because I was shocked. I hadn't yet allowed myself to call myself a writer "officially" or anything, let alone hearing it come out of someone else's mouth! Why did it make such a difference to have his validation? Why did I need that? Why did it shock me? And on and on.
Anyway, all this babble to say I keep re-discovering every single day that the value of practice is in the practice, not in the quality of the paper or pen. I want to be a writer, so I write. I want to be an artist, so I make art. I want to be a gardener, so I drop seeds into the dirt. Live it. Go for it. Take out that stack of paper bags and make art. And by the way, the muted mandala/gelli press art you see in the photo with this post is done, yes indeed, on a ripped up paper bag!!
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This phrase: don't throw away your life. Or the idea where social injustices occur and we humans ignore it as if the people affected are just living lives that are disposable: throw away lives.
The amount of grief in those phrases makes me buckle under the truth that these are not just words. Rather, we are talking about human beings here.
I can understand we care about another.
But to impose your ideas of right and wrong on others by trying to guilt them into thinking they will throw away their lives??? I don't mean the big things. If someone you love is an addict, then maybe, yes, okay, I can see you asking them to seek help, support, rehab so they "don't throw away" their lives. But to tell someone they are throwing away their lives because they want to major in art in college? Or to suggest they are throwing away their lives because they want to marry someone of a religion or race you don't like/don't want them to/whatever? Seems...needlessly violent, harsh, causing oppression instead of actually being in relationship with them?
I can't understand how we don't care about each other.
To look at the justice system or the water system in the good old USofA and throw up your hands and say, "Oh well, nothing I can do," seems like a defeated acceptance of the idea that people are disposable. Or to keep doing exactly what we are doing because "that's just how it is," seems like a collusion with the idea that some are just living throw away lives. Not saying we can be the solution, solo, ourselves, BUT we can DO something. When I am called for jury duty, I can go into the courtroom and when asked questions in voir dire, I can speak the truth. They'll never want me for any jury probably and the judge might threaten to have me arrested, BUT I can still speak the truth. I may not be able to change the pipes in places like Flint, but I can keep sharing on social media about the situation. I can sign petitions. I can donate money. I can protest visibly in the world, on the street when possible.
While the idea of using tossed away paper or disposable paper bags for writing, for not making writing process too precious, makes sense to me; the idea of LIVES being disposable makes no sense to me. We may make mis-takes (missed takes, like in the movies, so do another take). BUT we don't throw away our lives if we major in art or inter-marry religiously or racially. We have big social justice issues in the world, and while we individually can't fix the big picture, the people affected most by these issues are not lives we can throw away! There is action to be taken. Do something. Start by LISTENING to the people most affected!
The oppression of grief around these ideas is relieved some for me by taking action.
What does it for you?
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More than ever, I hold close to my heart, the idea that it takes creative approach and practice to address our grief experiences and remain in touch with our humanness; our vulnerability; our (maybe broken) open hearts.
None of us can meet impossible expectations. We can only live our lives as practice. Make mis-takes (missed-takes), try again, keep experimenting. I have no answers beyond that. There are no such thing as "experts," but rather just people who are practicing practicing. And after all their practice, they know what works for them and are open to sharing BUT that should just be an invitation for you to practice and find your own ways. Their ways can't possibly be 100% yours, too. That's okay.
Listen. Learn. Do.
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Don't have some sweet, wind-it-up, conclusion here. The swimming-ness flow of all these thoughts is all I have to offer as a reflection of my own grief + creativity. May Reiki flow to any and all eyeballs who come across this.
Kara
[Previous version published 2016 in Radical Creativity]
Podcast: Social and relational changes in the face of grief (aka my interest in fellow humans is very different now!)
- Grief shifted lots of things after our son died, including our social experiences and connections that suddenly felt like alien territories.
- Platitudes or anything close to them were not going to meet my needs in social and relational ways in the face of grief. Some people could go beyond platitudes with us. But some could not. Relationships changed.
- I share a few specific examples of how we began noticing social and relational needs were no longer being met for us, how social trusts were being broken, and how even faith can be shaken post-grief.
- And then I share a few specific examples of how we can creatively explore what we want to save in various relationships, where we want to discover new relationships and social connections, and how we can begin purposely seeking social and relational spaces that more readily meet our post-grief needs.
- Tending social and relational connections are both self care AND community care.
- Not every relationship is going to meet every need. Be gentle with yourself and others as you explore what each relationship can be and can't be in your post-grief life.
- The re-definition of social and relational aspects of life just do shift post-grief. That's okay.
To stream this podcast, click here.
Thanks as always for listening!
From my radical grandma heart to yours,
k-
If you like what you hear,
please click the tip jar to support
our grief+creativity efforts.
our grief+creativity efforts.
[Originally published as written article at Radical Creativity, March 23, 2012]
10 Ideas for tending when grief is breaking your heart(open)...
[Featured image: Summer daisy in full bloom with black and white distressed border on photo. Words surrounding: "Whatever is unfolding, even if it is the most difficult stuff, find some spot of ease each day where you can rest your body, mind, and heart."]
When grief experiences come along and seem to break our hearts (hopefully break them open, not just break them), it can be exhausting in all ways: body, mind, and emotion. Even being able to read or concentrate can be trying, so this is a quicky 10 ideas for tending when things are most difficult:
- As soon as you notice the difficulty is pressing on you, stop. Breathe deeply, allowing the breath to go all the way down to your toes and hold it for just a second. Then release and let your physical body relax a little with the exhale. Do this a few times if need be.*
- Can you get to a spot with access to clean water? If so, take a few moments to go there, rinse your hands, face, neck. Let the coolness or warmth of the water bring you fully into the moment, the body.*
- Can you find a place to comfortably sit for a few minutes? Maybe sit nearer the edge of the surface and flex and stretch your feet, pointing toes out, pointing toes up. Allow the stretch in your feet and calves be a reminder to tend your being.*
- How much water have you had to drink today? Can you get access to clean water now to drink a cup or fill a water bottle to keep you hydrated for the next little while?*
- Is this current difficulty leaving you feeling isolated or lonely? Is there one friend or love you can text - you don't even have to use your voice if that's too hard - just text to say, "Hi there, can we text for a bit to check in?"*
- If you can't think of anyone you'd like to be in touch with, how about trying out the text crisis line (US service only at this time) to chat with one of their volunteers. You don't have to be having suicidal thoughts to text, but rather just if you are having a moment in which you need some support, they can help. Here are details on how it works.*
- Can you find a few minutes to have complete quiet and stillness? You can set timer if need be so it doesn't feel endless or something. But just for 3 minutes or 5 minutes, can you close a door, turn off phone, find as much quiet as possible, just for a few? Sometimes the space of quiet can reset our head!*
- Or on the other end of the spectrum, can you take a few moments to listen, uninterrupted, and really savor your favorite tune? Maybe in a room with door closed, alone space? Or if not, then with earbuds in so you are kind of "away" from all the external stuff. Sometimes love of music can reset our head!*
- Can you use and do you have access to a piece of paper and crayon or color pencils or markers? Can you spend a few minutes just scribbling out whatever is hurting most right now? No "artmaking" type space, just scribble scribble to get the energy out of your heart and head, through your arm and fingers, and smooshed out on the page? After all is smooshed out, maybe take a few minutes in empty spaces of the scribble to write a few words that are in your head around this energy?*
- Do you have a favorite soft blanket or shirt or scarf? Something where the texture makes you feel safe or warm or cool or tended in some way? Can you get that now and wrap it around or wear it for a bit now? Allow yourself to feel enveloped.
By no means is this a comprehensive list. But I hope it encourages you to notice when things are hurting or difficult, and then check in with yourself to see how you can tend, either individually or in connection with others. And if you have other ideas to add to this list, please know you are invited to share them in the comments here <3
From my radical grandma heart to your heart!
k-
After grief comes, life goes relentlessly on...
After a significant grief experience in my life, a friend said to me, "Isn't it unnerving how life goes relentlessly on?"
It's true. Relentlessly. I'm so not cut out for relentless. 14 years. 2 years. 12 weeks. Whatever the time since the date of the death or loss, we wake up each day and the relentlessness starts.
People ask why I couch my work as grief *and* creativity. Because it takes A LOT of creativity to find reasons to get out of bed, to put your feet down on the relentless ground, every single day after grief comes.
It takes A LOT of creativity to honor self care and community care, especially in the face of white supremacist, individualistic, capitalistic, patriarchal culture.
It takes A LOT of creativity to be a helper in this world, honoring the sacred trust that extends out from us toward others AND also allowing others to extend back toward us in return. We may find we are not very practiced at accepting what others offer us. We may find we are in a culture that says you are supposed to be "professionally detached," so even just acknowledging that there is a two way relationship happening when in the role of helper can be taboo.
And when grief experiences knock us out of our routines, even our best efforts at re-entry to life can be complicated by the relentlessness that goes on. By realizing our previous work or priorities are completely different now. By a chronic illness that crops up. By the shock of realizing those you thought would stick by you don't, and by the gratitude you feel for complete strangers who show up in significant ways.
Creativity is needed because even as we are re-entering the relentless world, there are still gems to be found in the spaces grief originally took us. Remember how tended you felt when you allowed yourself some time in your blanket house! Remember how tended you felt when a friend stopped by and you allowed them to see your messy kitchen in which they ended up doing dishes for you! Remember how tended you and your community were when leaders stepped back and asked, "What do you need right now?" instead of being dictators determining for you what was needed!
Re-entering the relentless world might seem to put you in a position where competition, money making, and over-functioning are valued, while the gems of listening to your body, collaboration, and community building are devalued. But screw that! We have permission to notice how relentlessness does not work for us. Don't ignore all you know now.
Having re-entered the world, are you again noticing things aren't quite right? Feeling exhausted? Can't sleep enough? Not much seem pleasurable? Body pain? Irritable at the smallest things? All big red flags calling for tending. How do we counter individualism, wealth worship, and "working through the pain" when we find ourselves surrounded by this relentlessness of "fake it till you make it" bs again?
While I don't have all the answers, I know that grief's different beat taught me it is valuable to give the sad, exhausted, hard spaces my listening ears. I need to hear them because they point me back toward relationships that nurture, toward paradigms of cooperation and collaboration, back toward the fact that relentlessness does not allow us to bring our whole selves to the table.
Individually this may look simply like reaching out to a friend via text to say, "Help. I need an ear." Or it may look collectively like calling "3 days bereavement leave" the bullshit that it is (remember that contract workers don't even get 3 days!), and demanding structural change that actually supports people when they are grieving.
I know it is unnerving that life goes relentlessly on after grief comes. AND I know that your heart is full of creativity that can be tapped to help buoy you through. And you aren't in this alone. Our connections matter. Whatever your situation looks like, just know that I SEE YOU.
Miracles,
k-
[Alternative version published at Radical Creativity Wednesday, October 10, 2012]
Podcast: When Small Talk Is No Small Matter
This podcast is exploring how even the most tiny of things can get shaken and require us to make new meaning in the aftermath of grief. Small talk becomes no small matter for some us having grief experiences, and so in this episode, we are exploring:
- Things, our faith, our work, even small talk, change after grief comes.
- So how do we re-imagine our social being?
- Small talk can feel like it is bombarding us, and we have less tolerance for it and other social experience.
- How do we get curious about this rather than judgmental about it?
- Addressing these realization can help us release shame also.
- What questions do we ask of ourselves to re-create our meanings and connections?
- How do we tend and take time to be our own best advocate AND reconnect with others?
- What does a different kind of small talk sound like - an example.
- These redefinitions are important because they get to the heart of the matter and this is where we have agency.
To stream this podcast, click here.
Thanks as always for listening!
From my radical grandma heart to yours,
k-
If you like what you hear,
please click the tip jar to support
our grief+creativity efforts.
our grief+creativity efforts.
[Originally published as written article at Radical Creativity, March 24, 2012]
Abby's Bad Advice: bereavement in a grief denying culture
Bereavement may feel like an extraordinary process, but it is such an ordinary and every single day happening. We’re all human. We all die. Every day people die. Naturally or not. And people are left grieving those who died. Every day. People are left not only trying to integrate this new reality without the person they loved, but also facing mortality issues, seeing up close and personal how death comes for us all, facing issues of their own mortality. This is happening every. single. day. on our planet.
And yet people having grief experiences, more likely than not, are treated as if they suddenly have a disease that needs to be cured, fixed, gotten over or that requires “closure.*” Given that the bulk of our world is a grief denying society**, it actually may be the case that people end up feeling dis-eased (not diseased, but dis-eased). Many people I've worked with over the years are in fact not at ease at all and not being helped to feel at ease either! The more uneasy we feel, the more isolated we may tend to become. The more isolated we become, the more complicated the grief experience becomes. The more complicated the experience, the more ill at ease we get. Vicious cycle.
I'm not sure how we think people can do self-care (individualistic values), when as a community (the context within which we all live, like it or not) we can’t even figure out how to deal with the most ordinary of happenings!? When we can’t face the ultimate reality for all of us? When we have no community value on care in this area?! Death will happen to all of us. It is a fact. And avoiding that fact isn’t helping anyone. So why do we continue this pattern? And how can we change it?
Why it continues
There is an idea you may hear around the issues of addiction or domestic violence that says to truly heal, to be whole again, we must break the cycle. Until we can break the cycle of our grief denying culture (societal value), we simply repeat the pattern of ostracizing each other and ourselves (individual level) because we play into the denying, we fear challenging the dominant paradigm, the prevailing beliefs of the world around us.
Thus, though it seems so incredibly unfair, those having the grief experiences themselves, at the very moment they should be getting the most care, instead must muster up and advocate for change. Those having grief experiences themselves must break the pattern. No, it isn’t fair. No, it isn’t easy. But I have come to figure it this way: Hell, I'm ill at ease already anyway, so why not just go with it, lean into the dis-ease, and push for breaking the habits of our cultural denial!? Onward!!
How can we change it
One of the most important things we can do is to give voice to our grief. Refuse to be silent. Speak up, speak often, continue to speak about your grief experience over time. This might be verbal, but it also could be written or communicated through art of various mediums. Just giving expression in whatever ways possible, *that* is key.
One of the most important models we can provide is to visibly show the evolution of our story. When we first speak up about our grief, we may find our story to be very fact-oriented. We share the minute details like time and date of death, where it happened, how we found out, and other very factual information. But over time, our stories evolve to be less about facts and more about meaning making. We begin to talk about what the death of this person means to us, how our life has been impacted by death, what this death has meant to us in facing our own mortality.
This evolution of the story is crucial as it indicates that there isn't simple closure beyond the facts, but rather an on-going life -- YOUR life -- being LIVED as you express love and what is important to you. As we model this evolution for the people around us, I like to think they are then also given permission to share their stories, to experience evolution for themselves. We all begin to grow and change together in a network of common experiences instead of being isolated in fear and violence. We move to a place where self-care is community care AND community care IS self-care.
By giving expression to our stories, we are also able to more visibly see how ordinarily often death affects us human beings. As we come to terms with one death, we may encounter another death. Our experience must now evolve to incorporate multiple loss. This isn’t a sickness. This is a normal, ordinary part of being human. It is a skill that should be taught, but it doesn’t fit well into scholastic educational curriculums, so we end up learning it on death’s timetable or at the insistence of loss, encountering the lessons whenever grief happens.
It can be a radical thing to refuse to play the grief denying cultural game whenever it crops up. It's been a few years now, but there was a letter sent in and answered by good, old Dear Abby in which the writers asked Abby for advice about how to handle communications with a stillbirth mom in their office place. I was shocked at the time by what seemed and uninformed and uneducated answer given by Abby, and we did a full article about it in the Loss Journal at KotaPress back then.
Today, I’d like to address just a couple of the points that came up from this national exchange in Dear Abby’s playground. One of the things the co-workers had a problem with was the fact that the stillbirth mom had a photo of her child on her desk. Another thing they had a problem with was communicating with the mom because they said she was “mean and gossipy." Of course Abby told them they were right, that the photos were “inappropriate,” and that the boss should deal with this “delicate” situation.
Have you ever read a more grief denying exchange?! So here is a woman in extreme grief, hurting, feeling alone, trying to integrate all that has happened in her life. And she is calling out to communicate, to express her story, have it be visible. It's just *possible* that if she were given space for that expression, maybe over time, she and her co-workers would have benefitted from both self- and community-care.
But instead, the woman’s photo of her child is abhorred and stigmatized as "making people uncomfortable” because they have to face the reality of death and dying when they’d rather participate in denial, keep their heads down, and work work work. Capitalist productivity over humanity. A-huh.
And, you know, if you were ignored and abhorred – if your children were abhorred like this – do you think you would be mean, angry, difficult to work with, have vindictive feelings towards all around you? I know I sure would – and it would take me a long time to do the self-tending work necessary to work through all the layers of that grief denying crap that was laid upon me!
Abby and the co-workers missed a chance to participate in the solution and instead continued the cycle of abuse and isolation. There are several things that would hold a much more productive truth for all involved, if only Abby or the co-workers would have taken the time to educate themselves – or if the mom (albeit already burdened with her process) had had a model by which advocacy and expression would take precedent over isolation and "closure."
First, office policy would dictate the display of photos, period. If the other co-workers are allowed to have photos of their children displayed, then guess what? The bereaved mom would be allowed to have her photos, too. If she is singled out and prevented from showing her photos, it is at best censorship, and at worst it is discrimination.
If the other workers have a problem seeing the photo – and if the mom is having trouble adjusting being back at work – well those are indeed the boss’ problems. But it is not the boss’ job to simply address this “delicate” issue by shutting it all down. Instead, this boss plays a role in acknowledging this is a real, every day, human, ordinary issue, and everyone on his/her staff needs extra support and education in the areas of death, dying, and bereavement. They all need sensitivity training. A review of their bereavement leave and insurance coverage for mental health support for grief experiences needs to be done. And it sure sounds like they all need to build teamwork skills.
Sadly, in our grief denying culture, Abby doesn’t suggest any of this, the boss probably won’t do anything but censor the photo, maybe fire the mother, and the mother may be on her own to find support for figuring out how to translate grief, isolation, maybe anger into advocacy.
Conclusion
It is my hope that this article can be a prompt that opens discussion, an opportunity to shift our perspectives, a call to action for all of us to learn and begin advocating for change. I wish it could start with multi-media, pop culture, icons like Dear Abby and with bosses in every workplace across the world. But unfortunately, I don’t think that’s going to happen. They will not be “saviors” or even leaders in this realm. And so, though I know grief experiences are the very moments we all need the most help ever, I call on us all, after getting whatever support we need first, to also seek education and active mentors who can then help you step into the role of advocate. We need you. None of us in this world will get out alive, so really, we need you.
Miracles to you,
Kara
* If you are interested in more on why I put the word "closure" in parenthesis, you
might check out Nancy Berns book "Closure: the rush to end grief and what it
actually costs us."
** “Grief Denying Society” was a phrase I first heard in a presentation by
Molly Greist, Stone Sculptor, Bainbridge Island, WA.
[Original version published in KOTA: Knowing Ourselves Thru Art, August 22, 2007]
Grief and Showing Up...new podcast
- What are the rules that seem to dictate how we show up or don't during grief experiences?
- What does it mean that we get only 3 days bereavement leave?
- What does it mean to "get closure" when we are still alive and living our experiences?
- How do we show up without having to intersect with "perfection"?
- What happens when we show up even when we're not or the situation is not what might be deemed "perfect"?
- How do we show up even if it is scary to do so?
- How do we keep ourselves practicing ways to show up?
- Metaphors abound in artmaking or writing or showing work or publishing.
- When we show up, we enter into self-care, AND begin to intersect with others so that self-care truly IS community care.
- When we show up to tend our path, we allow other people space to show up, too.
- When we show up to tend our path, we create sacred community space, too.
Thanks for listening!
From another radical grandma trying to shape the world we are in,
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